6. In what specific ways did the media influence the publics perception of cell hybrids? She was institutionalized due to epilepsy and died at age 15. Explain how the sale of HeLa evolved into a business. Zakariyya uses the term disrespect to describe Geys treatment of Henrietta and the family. Sign up for news about books, authors, and more from Penguin Random House, Visit other sites in the Penguin Random House Network. 14. In May 2001, Deborah, Zakariyya, and Rebecca head to Lengauer's lab. Where They Are Now/Afterword 1. The Lacks family suffers a number of deaths and misfortunes. 9. She died when Henrietta was four.Elsie Lacks (born Lucille Elsie Pleasant) Henriettas second born and eldest daughter. The Immortal Life of Henrietta Lacks Eventually they found someone to help them: a bushy-bearded man named Paul Lurz. 5. Deborah shoves Rebecca into a wall, and Rebecca tells her to back off. Rina reads around 100 books every year, with a fairly even split between fiction and non-fiction. Links to several radio productions and podcasts are provided at the end of the guide. She does not allow Rebecca to photocopy the documents, so Rebecca must go through each one individually. Why is the publication of this information troubling from an ethical and legal standpoint? What were some of Deborahs fears and concerns after she found out that her mothers cells were still alive? The MDHHS may Describe the attempts Wyche made to get recognition for Henrietta and her family. Were they informed about the research and its risks? What stereotype or bias might this assumption be based upon? TO CANCEL YOUR SUBSCRIPTION AND AVOID BEING CHARGED, YOU MUST CANCEL BEFORE THE END OF THE FREE TRIAL PERIOD. Explain your answer. Johnny Pleasant Henriettas father. Subscribe now. Explain the various ways in which both the scientific community and the media are guilty of having viewed Henrietta and her family as abstractions. She's not too concerned about the money. 5. 3. 7. For the next 7 days, you'll have access to awesome PLUS stuff like AP English test prep, No Fear Shakespeare translations and audio, a note-taking tool, personalized dashboard, & much more! The side-effects of pneumoencephalography were many, including seizures, nausea, headaches, and permanent brain damage. 4. Why were the hospitals medical records from the 1950s and earlier disposed of? She helped raise Lawrences siblings after Henriettas death, and advocated for them when she discovered they were being abused.Cliff GarretHenriettas cousin. Why did scientists find the Moore lawsuit deeply troubling? Soon, a simple urine test, with examination of collected cells, may be the new standard for bladder cancer testing, replacing the invasive and often painful tests currently used. Albert Lacks Henriettas white great-grandfather. 6. Henry County Schools Cast of CharactersImmediate Lacks FamilyDavid Day LacksHenriettas husband and cousinDavid Jr. Sonny LacksHenrietta and Days third childDeborah Dale LacksHenrietta and Days fourth childElsie Lacks (born Lucille Elsie Pleasant)Henriettas second born and eldest daughter. Margaret Sturdivant Henriettas cousin and confidante. 3. Feedback, questions or accessibility issues: Clint Smiths Releases New Poetry Collection, Above Ground, Go Big Read seeking book suggestions for 2023-24, 2022-2023 Go Big Read Keynote Event with Clint Smith. Explain your answer. Analyze how and why individuals, events, or ideas develop and interact over the course of a text. 2. WebNeed help with Chapter 34: The Medical Records in Rebecca Skloot's The Immortal Life of Henrietta Lacks? Chapter Seven: The Death and Life of Cell Culture 1. He also believed that the family should be entitled to some of the profit made from HeLa cells. Youve successfully purchased a group discount. He left his ten children when their mother died. Explain why it would be easy to believe that the Marvel super villain, Hela, Goddess of Death, was based on Henrietta Lacks. What was Elsies early life like? How are the white and black Lackses related? As Skloot and Deborah walked the halls, the place appeared to be abandoned; and when they came across a room labeled Medical Records, they found that the room was empty. 4. What did Howard Jones realize when he reviewed Henriettas medical records? Deborah begins to grow increasingly erratic, insisting on keeping the photo of Elsie in the front seat of her car and showing it to everyone she meets. 6. Describe the way that Deborah and Zakariyya interact with their mothers cells. Courtney Mama Speed resident of Turner Station and owner of Speeds Grocery. How is it being challenged by emergent technologies? 6. She organized an effort tobuild a Henrietta Lacks museum.John Moore cancer patient who unsuccessfully sued his doctor and the regents of the University of Californiaover the use of his cells to create the Mo cell lineThe Immortal Life of Henrietta LacksRebecca SklootA Broadway Paperback ISBN 978-1-4000-5218-9 RebeccaSkloot.com HenriettaLacksFoundation.orgA Readers GuideMichael Gold author of A Conspiracy of Cells. Why was Skloot surprised by the appearance of Crownsville? You can opt-out of the sale or sharing of personal information anytime. Why did Johns Hopkins start a medical school and hospital in a poor black neighborhood? Rebecca remembers when Deborah said that heaven must look like Clover, Virginia. Explain the inherent irony of the fact that the Tuskegee HeLa production lab was operating at the same time that the infamous syphilis study was being conducted. Elsie Lacks medical records show that she suffered abuse, experimentation, and mistreatment. 3. Craft and Structure Interpret words and phrases as they are used in a text, including determining technical, connotative, and figurative meanings, and analyze how specific word choices shape meaning or tone. Tommy Lacks Henrietta and Days grandfather who raised both of them. WebElsie Lacks -Henrietta's second born -institutionalized for epilepsy -treated poorly in hospital -died at fifteen Loretta Pleasent Henrietta's birth name Chester Southam -Mixed saline Describe the extent to which the profits from that business are likely a direct result of the sale of HeLa cells. When Skloot met Sonny and Lawrence, they expressed a belief that the medical advances made possible by their mothers cells are a miracle. How do Zakariyyas beliefs differ from those of his brothers? Eliza Lacks What conclusion did they draw about George Gey and Johns Hopkins? 5. On the Horizon: Painless Way to Check for Bladder Cancer What is spontaneous transformation? The Lacks Legacy: Reforming Racism in the Medical Field What is Skloot revealing through the juxtaposition of scenes and the division of the book into the three sections of Life, Death, and Immortality? 8. Is their belief based on real events? What does it tell you about Joes personality and background? 5. Why is standardization important in scientific research? She is the Founder and President of the Henrietta Lacks Foundation. How did her reaction evolve after she had a chance to dwell on the picture and process the disturbing information that she had been given? How have laws regarding medical privacy changed since the early 1980s? 6. 3. This is where youll see your current point status and your earned rewards. What are the obstacles involved with conducting research purely for altruistic reasons? She was trained as a surgical nurse.Mary KubicekGeorge Geys lab assistant who cultured HeLa cells for the first timeRichard Wesley TeLindeone of the top cervical cancer experts in the country at the time of Henriettas diagnosis. Why do you think Skloot structured the book this way? How did her doctors react to Henriettas intuitive conviction that the cancer was spreading inside of her? Based on these results, did his hypothesis appear to be correct? Cliff Garrett Henriettas cousin. His research involved taking tissue samples from Henrietta and other cervical cancer patients at Johns Hopkins. 14. --Tom Nissley, Amazon.com (Retrieved July 11, 2011). Explain Van Valens theory that HeLa cells are no longer human. Was his theory accepted by the scientific community? Rebecca recalls the time she spent with Deborah, and she rematches the BBC documentary in which a young Deborah was interviewed about her mother's cells. LibGuides: The Immortal Life of Henrietta Lacks: About the Book Study recent legal disputes over the collection and use of tissue samples. Her penchant for always having a book nearby has never faded, though her reading tastes have since evolved. After her diagnosis and treatment, how did Henrietta behave? Walter Nelson-Rees the geneticist who tracked and published the names of the cell lines contaminated with HeLa without first warning the researchers he exposed. How long did Henrietta wait between first telling her girlfriends that something didnt feel right and going to the doctor? What motivated Pattillo to organize the HeLa Cancer Control Symposium? The Immortal Life of Henrietta Lacks essays are academic essays for citation. SparkNotes Plus subscription is $4.99/month or $24.99/year as selected above. Deborah presented documents proving she was a relative of Elsies and had a right to view Elsie Lacks medical records. Compare the medical terms describing Elsies condition with the terms used by Henriettas friends and family. He carefully explains the process of cell division, and explains that all the information that made Henrietta herself is contained within these cells, in their DNA. Does some medical research seem more wrong? What is important to him? 8. As the story of HeLa unfolds, so does the story of Henriettas surviving children, who for two decades were unaware of the existence of their mothers cellsand the multimillion-dollar industry that developed around the production and use of HeLa. The Immortal Life of Henrietta Lacks According to Henriettas cousin Cliff, what is beautiful about the idea of slaveowning white Lackses being buried under their black kin? 4. Explain your answers. Leonard Hayflick microbiologist who proved that normal cells die when theyve doubled about fifty times. Explain your answer. Did researchers explain why they wanted DNA samples to the Lacks family? WebThere were no specific records connecting Elsie to any research, but Lurz thought she was probably included in a study on pneumoencephalography, a method of draining fluid from Deborah says that this was probably Henrietta's revenge for using her cells without permission, and everyone laughs. Chapter Seventeen: Illegal, Immoral, and Deplorable 1. She helped raise Lawrences siblings after Henriettas death and advocatedfor them when she discovered they were being abused.Cliff GarretHenriettas cousin. Shortform has the world's best summaries of books you should be reading. Want 100 or more? $24.99 Deborah is still planning to give a speech at the National Foundation for Cancer Research Conference, and she also plans to go back to school to study science, so that she can better understand how her mother's cells are being used. Skloot would later learn that doctors had performed experiments on Crownsville patients without their consent. What details suggest that Carrels claims about the immortal cell line were not scientifically sound? Chapter Six: Ladys On the Phone 1. Chapter Thirty-Four: The Medical Records 1. Sonny undergoes a successful quadruple bypass survey, but wakes up $125,000 in debt because he did not have medical insurance. 2. Examine pages 5 and 6 and write down each step that Skloot took to begin her research. Describe Deborahs childhood. By signing up you agree to our terms and privacy policy. Lurz had informed them the Maryland State Archives in Annapolis had any surviving records that werent on the Crownsville, MD hospital grounds, and Deborah was keen to go there immediately (despite Skloots gentle probing of her emotional state). Deborah says she's going to bed, but then continues to check on Rebecca every few minutes, making up increasingly bizarre excuses each time. The Long Road to Clover 2009. He handed Deborah a vial of HeLa cells, which Deborah kissed. Chapter Thirty-Eight: The Long Road to Clover 1. The division also manages membership services for more than 50 scholarly and professional associations and societies. She is a former vice president of the National Book Critics Circle, and has taught creative nonfiction and science journalism at the University of Memphis, the University of Pittsburgh, and New York University. Despite Deborahs clear shock, she insisted she still wanted to go to the Maryland State Records Archive to see if Elsies medical records had survived. 4. Lengauer welcomes the family in, showing them the long freezers in which millions of Henrietta's cells are stored. LaTonya Deborah and Cheetahs second child. 2. The narrative structure of the book is quite complex, as the author weaves together numerous narratives. You'll be billed after your free trial ends. Chapter Thirty-Seven: Nothing to Be Scared About 1. What causes the confrontation between Deborah and Skloot? 5. Regardless of the truth of these hauntings, the stories of patient abuse and neglect, including that of Elsie Lacks, are even more horrifying to consider. Explain why this moment is significant. Explain your answer. The HeLa line may not resemble Henrietta's physical body, but there are other Biblical passages (1 Corinthians 15:40) that explain that heavenly bodies given by God may not look like earthly bodies. The questions and activities in the teaching guide for The Immortal Life of Henrietta Lacks were written to support standards-based instruction and are directly linked to many of the Common Core State Standards for ELA, Science, and Social Studies. There were no further records concerning Elsie in Annapolis, so Deborah and Skloot drove on to Clover. What did Henriettas friends and family do when they found out that she needed blood? Guided Reading and Discussion Questions are provided for each chapter. He had five children by a former slave named Maria and left part of the Lacks plantation to them. 2. 6. What scientific discoveries were made possible as a result of fused hybrid cells? What important information did Henriettas doctor fail to give her before starting her cancer treatment? 8. How is it being interpreted now? 13. Why do you think she responds this way? 4. Compare and contrast Skloots, Deborahs, and Zakariyyas interactions with the Jesus statue at Johns Hopkins. Rebecca finds one record from shortly before Henrietta gave birth to Deborah; the doctor says her cervix looked healthy then. 4. 2. Do you think this was a good decision? 8. What new perspective did she gain after these experiences? What disturbing discovery did scientists make about the way HeLa responded in orbit? What reason does Deborah give for not wanting Skloot to type out Henriettas records word-for-word? What is mitosis? What are the intended and unintended consequences of a profitdriven health care system? These prompts guide students toward an in-depth analysis of the themes and issues central to the story of Henrietta Lacks, and several may promote outside reading or research. The Immortal Life of Henrietta Lacks study guide contains a biography of Rebecca Skloot, literature essays, quiz questions, major themes, characters, and a full summary and analysis. How is he connected to both Henrietta Lacks and George Gey? What do the names of the creek and the river suggest about life in Lacks Town? 7. 7. Do you agree that Henrietta should have been correctly identified in order to give her the fame she so richly deserves, or do you think her anonymity should have been protected? Through the microscope, Deborah and Zakariyya watch their mother's cells divide in culture. Who are their common ancestors? Before You Read Point out the differences between the genres of historical fiction and nonfiction. 2. Delancey maintains that the public has not only memorialized those patient populations whom historical instances of purported abuse, neglect, and maltreatment once marginalized, but has also given those patients voice, agency, and, by extension, a measure of justice.. Before her death, she received treatment in a segregated colored ward at Johns Hopkins, the only hospital in Baltimore that would treat black patients. 3. 7. Research the laws and the ethical debate over offering payment in exchange for participation in scientific studies, or for the donation of blood, eggs, sperm, or other biological materials. Margaret Gey George Geys wife and research assistant. Skloot tells her that the blood McKusick took from her family wasn't for a cancer test. How did Day initially respond to their request? He was the first journalist to contact the Lackses.Sir Lord Keenan Kester Cofieldattempted to sue Johns Hopkins and the Lacks familyTed Slavina hemophiliac whose doctor told him his cells were valuable. He and his wife Ethel moved in with Day after Henriettas death to help take care of the children. How long had Henrietta been dead when her family found out that her cells were still alive? What unique abilities did HeLa have that allowed it to contaminate cultures without researchers being aware that contamination had occurred? 2. Henriettas cells have been bought and sold by the billions, yet she remains virtually unknown, and her family cant afford health insurance. After her initial round of treatment, what did Henriettas doctors assume about the effectiveness of the radium therapy? Other Titles of Interest I Know Why the Caged Bird Sings by Maya Angelou Ten Days in a Mad-House by Nellie Bly The Speckled Monster: A Historical Tale of Battling the Smallpox Epidemic by Jennifer Lee Carrell Remembering Jim Crow: African Americans Tell About Life in the Segregated South Edited by William Chafe, Raymond Gavins, and Robert Korstad Fried Green Tomatoes at the Whistle Stop Cafe by Fannie Flagg The Immortalists: Charles Lindbergh, Dr. Alexis Carrel, and Their Daring Quest to Live Forever by David M. Friedman Bad Blood: The Tuskegee Syphilis Experiment by James H. Jones The Right to Privacy by Ellen Alderman and Caroline Kennedy In The Name of Eugenics: Genetics and the Uses of Human Heredity by Daniel Kevles The John McPhee Reader by John McPhee and William Howarth Polio: An American Story by David M. Oshinsky The Lives They Left Behind: Suitcases from a State Hospital Attic by Darby Penny, Peter Stastny, Lisa Rinzler, and Robert Whitaker Genie: A Scientific Tragedy by Russ Rymer Coal River by Michael Shnayerson Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present by Harriet A. Washington The Plutonium Files: Americas Secret Medical Experiments in the Cold War by Eileen WelsomeOnline Resources Author Web site: http://rebeccaskloot.com/ Lacks family Web site: http://www.lacksfamily.com/ Radiolab segment on the story of Henrietta Lacks and her children, featuring audio footage of Deborah Lacks talking about her mothers cells, and actual recordings of key scenes from the book: http://www.wnyc.org/shows/radiolab/episodes/2010/05/07/segments/150681 Fresh Airs Terry Gross interviews the author: http://www.npr.org/templates/story/story.php?storyId=123232331 CBS Sunday Morning piece featuring interviews with the author, members of the Lacks family, and a representative from Johns Hopkins: http://www.cbsnews.com/video/watch/?id=6304949n&tag=related;photovideo Tavis Smiley interviews the author: http://www.pbs.org/kcet/tavissmiley/archive/201005/20100514_skloot.html Are We Alone? public radio segment focusing on the science of HeLa cells: http://radio.seti.org/episodes/Cell_Cell_ Author appearance on The Colbert Report: http://www.colbertnation.com/ thecolbertreportvideos/267542/march162010/rebeccaskloot Slate article about the Law & Order episode based on the book: http://www.slate.com/id/2257189The Immortal Life of Henrietta Lacks and Common Core State Standards With appropriate scaffolding, The Immortal Life of Henrietta Lacks will meet the standard for Range of Reading and Level of Text Complexity for most high school grade levels. Why did scientists want to be able to clone cells for research? What do you think Cofield did? 4. Please wait while we process your payment. Craft and Structure Determine the meaning of words and phrases as they are used in a text, including figurative, connotative, and technical meanings; analyze the cumulative impact of specific word choices on meaning and tone (e.g., how the language of a court opinion differs from that of a newspaper). For a decade, Skloot doggedly but compassionately gathered the threads of these stories, slowly gaining the trust of the family while helping them learn the truth about Henrietta, and with their aid she tells a rich and haunting story that asks the questions, Who owns our bodies? Want to know what people are actually reading right now? What does Zakariyyas choice of wordsthat damn doctor who done rape her cells reveal about his feelings about and perception of what Gey did? What specific things did Deborah ask Skloot to promise she would do? MUSE delivers outstanding results to the scholarly community by maximizing revenues for publishers, providing value to libraries, and enabling access for scholars worldwide. Then Fred, Cootie, and Day all die as well. Currently, the journal prints essays on African American 9. He became known as a vigilante. 10). 2. What burden does he ask to be lifted from Deborah? Alfred Cheetah Carter Deborahs first husband. She was a poor black tobacco farmer whose cellstaken without her knowledge in 1951became one of the most important tools in medicine, vital for developing the polio vaccine, cloning, gene mapping, in vitro fertilization, and more. How is it resolved? WebIt's also a search for the right people to love. Those cells, he hoped, would allow scientists to unlock the mysteries of cancer, and eventually lead to a cure for the disease. Discount, Discount Code Henrietta Lacks Book Report She had a He has saved only a few bags of them, and miraculously, Elsie Lacks' medical record is included in this pile. All rights reserved. Dont have an account? 6. What is the implication of the authors decision to use the term birth to describe the initial growth of HeLa cells? Why didnt Henriettas family know that her cells were still alive? 2. WebHowever, only a few weeks later, her medical records indicate that Henrietta was in agonizing pain and unable to urinate. From a single, abbreviated life grew a seemingly immortal line of cells that made some of the most crucial innovations in modern science possible. Slavin founded Essential Biologicals, a company that sold his cells, and later cells from other people so individuals could profit from their own biological materials.Timeline1889 Johns Hopkins Hospital is founded.1912 Alexis Carrel claims to have successfully grown immortal chicken-heart cells.1920 Henrietta Lacks is born in Roanoke, Virginia.1947 The Nuremberg Code, a set of ethical standards for human experimentation, is produced as the result of a trial against several Nazi doctors who conducted experiments on prisoners during WWII.1951 George Gey successfully cultures the first immortal human cell line using cells from Henriettas cervix. Richard Wesley TeLinde one of the top cervical cancer experts in the country at the time of Henriettas diagnosis. 5. Explain what the Jim Crow laws were. WebThe records MDHHS maintains are limited to services provided by MDHHS programs. As Skloot tenaciously worked to gain Deborahs trust, Deborah struggled to understand what had happened to her mother and her mothers cells. Explain how Davons heroic actions saved Deborahs life. Why did Henriettas doctors need to ask for her familys permission to remove tissue samples after her death? A sample of her cancerous tissue, taken without her knowledge or consent, as was the custom then, turned out to provide one of the holy grails of mid-century biology: human cells that could survive--even thrive--in the lab. She whispers to the vial, saying that Henrietta is famous, but no one knows it. What did Deborah hope would happen as a result of Skloots research about Henrietta? Henrietta went to her house after radiationtreatments at Johns Hopkins.Reverend James PullumDeborahs second ex-husband, a former steel-mill worker who became a preacherSadie Sturdivant Margarets sister, Henriettas cousin and confidante. How old were Henriettas oldest (Lawrence) and youngest (Joe) children when their mother died? Deborah feels much better after this ritual, and the two women head outside into the rain, which Gary says has been sent by God to cleanse their souls. Immediate Lacks FamilyDavid Day LacksHenriettas husband and cousinDavid Jr. Sonny LacksHenrietta and Days third childDeborah Dale LacksHenrietta and Days fourth childEliza Lacks PleasantHenriettas mother. on 50-99 accounts. What did Howard Jones find interesting about Henriettas medical history? What do the Lackses believe night doctors do? 8. Deborah and Zakariyya were shocked to hear Lengauer admit that Johns Hopkins had made a mistake in their treatment of the Lacks family. 3. 2. Although a right to privacy is not explicitly mentioned in the Constitution, the Supreme Court has established that it is inherently protected by the Constitution. What was the lawyers main argument in Joes defense? WebMedical records are maintained by Health Information Management (HIM) at MyMichigan Health. 4. 4. Evaluate whether or not you think this is an appropriate way to interpret the story. 9. Were cells taken only from black patients? Teachers are encouraged to adapt some of the prompts for use in debates or Socratic seminars. The Immortal Life of Henrietta Lacks Suffering | Shmoop 4. Haunted Hospitals and Patient Abuse | Go Big Read Tap into Getty Images' global scale, data-driven insights, and network of more than 340,000 creators to create content exclusively for your brand. What is Lengauers attitude toward the HeLa contamination problem?
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